Blog Posts

New transplant medication

Posted by joanie brandon on February 22, 2015 at 9:11pm 1 Comment

Hello everyone, I hope this find everyone bless as I am. I am celebrating ten years with my liver transplant (thank you lord). My physician just changed my meds from program and cellcept to prograft and myofortic. Just asking if anyone is using myofortic? I adjust a little scared of the recent change.

CARLA GRACE BORTON, Canadian double lung and heart transplant recipient, dies.

Posted by Roch Longueepee on February 14, 2015 at 7:00pm 0 Comments

                               CARLA GRACE BORTON

June 19, 1958 - January 6, 2015

My dear friend Dana received word tonight that her mentor who was also a double lung and heart transplant recipient…


I'm Back!

Posted by Audrey Clark on February 9, 2015 at 2:19pm 0 Comments

I totally forgot about this page. I decided to Google myself and found my picture from this site in the images. Do people still use this site? 

Update on me:

I have had my 2nd double lung transplant and am now in chronic rejection. I did a round of Photopheresis in 2012 and the docs don't think it worked. I went back on oxygen in May of 2013. The docs wanted me to do another round of Photopheresis so I started that in  August of 2014 (I think). I had several port-a-cath…


Enter the ITNS (Why I Celebrate My Transplant Nurse) Transplant Nurses Day Essay Contest!

Posted by on January 30, 2015 at 6:00pm 0 Comments

Enter the ITNS Transplant Nurses Day Essay Contest!

The 2015 theme is Why I Celebrate My Transplant Nurse.



Meeting our son's heart recipient

Posted by Barbara Stebulis on January 6, 2015 at 2:10pm 0 Comments

Three years ago, I began a discussion group targeting transplant recipients...I wanted to know how they felt about contacting/being contact by/meeting their donor family.

I thought I would take a moment to update.

Our son, Brett, died as a result of head injuries and other multiple system traumatic injuries on January 13, 2008. Next week will mark his seventh heavenly birthday. Life is so changed, unalterably and permanently...

At the urging of a heart recipient friend, who… Continue

Which Are Healthier Food Choices For Diabetes?

Posted by Caring 4 Carrie on November 23, 2014 at 9:29pm 0 Comments

Happy 'S.H.A.R.I.N.G' Sunday! Today's Kidney Fact: Diabetics have to make healthier food choices to avoid a drop in blood sugar which causes Hyperglycemia. (Test your knowledge and kindly share your answer.)

You Should Eat A Lot Of This If You Have Diabetes:

A) Natural Sugar

B) Added Sugar

C) Fiber

D) Processed foods

Note: The correct answer will be provided…


Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?

Posted by on November 14, 2014 at 6:40pm 6 Comments

Have You Come Up With A Transplant Related

Invention Or Other Medical Idea Or Innovation?

Transplant Cafe & Edison Nation Medical Have Teamed Up To Help You Bring Your Idea(s) To Market!!

If you've ever had an 'aha moment' and came up with a new idea for a medical device, but found it too hard to develop and bring to market, or just weren't…


Near Death Experiences

Posted by William R, Armstrong on November 12, 2014 at 10:05am 2 Comments

To the person asking if anyone had a near death experience during their surgery? Yes i did . my Name is William Armstrong you can email me anytime at  feel free to ask me anything.

Wow it has been TOO long!

Posted by Heather Hazlett on November 11, 2014 at 12:34pm 0 Comments

Hello Everyone,

Have no idea if anyone even remembers me or follows my posts on here since I have been absent for sooooo long!  Really not sure where I have been or why I have not posted in so long!  I must say that all is going well as far as my miraculous transplants go!  My cornea transplant still gives me a beautiful view of the world after 9 years and my kidney/pancreas transplant, which turned 7 in July, is still giving me the renewed life I had never dreamed I would…



Getting Fit While in Chronic Rejection of Lung Transplant

Started by Audrey Clark in Sports & Fitness Feb 16. 0 Replies

Hello, I am in chronic rejection of my 2nd double lung transplant. I go to pulmonary rehab twice a week but it doesn't seem like it is enough to get me fit. I get out of breath easily and it is likely that I will ever go to a gym. So I was wondering what you guys do to stay fit at home?Continue

Muscle Weakness and Joint Pain

Started by Terri Warren in Transplant Cafe Discussions - Archive & Discussion Forum Feb 5. 0 Replies

Hi - I am Terri and new to the café.  I found this site in my pursuit to find out if there was any connection between my liver transplant, that took place on 12.24.12 (best gift anyone can get!), and the muscle weakness and joint pain that I have been experiencing.I have been tested for a variety of medical reasons that showed no explanation, soooo, I truly believe my body is "basically addicted to  Prednisone!"  Once I was back up and moving again after the transplant I realized that something…Continue

averae wait time for liver transplant

Started by Cathy Mcferrin in New to the Cafe? Introduce Yourself to the Community!. Last reply by David Goodman Dec 23, 2014. 2 Replies

Thanks for the sweet welcome to this site!Im in the insurance  phase , testing which my insurance paid for about $30,00 worth of testing. Can  I ask how long did you have to wait once you were on  the list?I have hepatic encephalopathy and have been to hospital twice in less than 6 months.  The first visit I was pretty much out of my head. Finally adjusting  the lactulose and  x drug . Everyone I came in contact with was just rubbing me the wrong way.Second visit finally got the lactulose…Continue

Having a single Peg of Whiskey after liver transplant, will it kill me?

Started by Prem Dayal in Liver Transplants. Last reply by Prem Dayal Dec 16, 2014. 2 Replies

I underwent a liver transplant 4 years ago due to acute liver failure, My medications have reduced to just 1 mg of Prograf twice a day. Since the past 2 years I started travelling and living in various countries. Currently I am in Bogota, Colombia. I know this could have been severely fatal for me but I tried for the first time in my life Cocaine,LSD and Marijuana here, which I had never done in my life. For a small period of time I almost got addicted to Coke, when I pulled my self together…Continue

Tags: acute, failure, post, alcohol, transplant

Please Participate in My College Project :) I need your input!

Started by Brett Crowell in New to the Cafe? Introduce Yourself to the Community! Dec 1, 2014. 0 Replies

Hey Everyone!!I am 17 years post kidney transplant and have a great interest in developing new ways to increase the quality of life for all the people in the transplant community. Here is a little more information on the survey that I have created! I have compiled a survey via Survey Monkey for my honors project during my final year as an undergraduate. The content of the survey has to do with the self-concept of transplant patients, social support, illness intrusiveness, and adhering to the…Continue

Vomiting and Diarrhoea after being exposed to chemicals

Started by Frank Colangelo in New to the Cafe? Introduce Yourself to the Community!. Last reply by HDHONEY Nov 22, 2014. 1 Reply

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping…Continue

Working after Transplant

Started by Gene Cost in General Discussion & Community. Last reply by Gene Cost Dec 1, 2014. 2 Replies

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much…Continue

Tags: disability, working, employment

Problems with pain in chest and weak bones

Started by Margaret Kelly in New to the Cafe? Introduce Yourself to the Community!. Last reply by Margaret Kelly Oct 20, 2014. 2 Replies

Hi everyone I am new here and I am from sunny Scotland in the UK.  I had my Liver Transplant in Dec of 2000 and since then I have been relatively fine healthwise except for a few bouts of pnuemonia and one of scepticemia.  Recently I have been having really bad pains in the right hand side of my rib cage which travels through to my back, I am also awaiting a bone density scan to get to the rout cause of severe joint pains.My question is, is anyone else out there having these problems and what…Continue

Tags: pains, bones/chest, weak

what anxiety meds have you used after transplant ?

Started by Walter s in New to the Cafe? Introduce Yourself to the Community!. Last reply by Mike Nov 15, 2014. 6 Replies

I was curious as to my options. myself I've been on xanex and it worked well but after a while it stopped working ... so I was curious what you guys on this site have used and if it worked well and for how long  ...Continue

Cardiac biopsy - how often?

Started by Parent of B in New to the Cafe? Introduce Yourself to the Community!. Last reply by Parent of B Sep 25, 2014. 2 Replies

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical…Continue

Tags: transplant, frequency, heart, protocol, biopsy



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