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Biopsy Report

Posted by Terri Lynne on June 17, 2015 at 8:00pm 0 Comments

My coordinator emailed me a copy of what the biopsy report said.

LIVER, ALLOGRAFT, CORE NEEDLE BIOPSY:

· CENTRAL PERIVENULITIS AND FOCAL DUCTITIS, COMPATIBLE WITH ACUTE CELLULAR REJECTION, FAVOR MILD.

· PORTAL FIBROSIS.

It basically says have some inflammation (already knew this from last biopsy), mild rejection and portal fibrosis. I've heard of fibrosis from other liver patients but not totally clear on what it is. Starla is in good hands with Dr. P…

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Health Care insurance

Posted by Dennis E. Chavis on June 15, 2015 at 2:21pm 0 Comments

Hello café! 

I’m Dennis Chavis.

Thankful, grateful, of the gift I received. Blessed with twelve years. I find myself needing lots of info! Liver transplant on October 4 2003, 3 months later and I’m back at work and things or great!

Today, I’m sick again. I stand at another crossroads, what to do?  Lost my job and can’t…

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Sudden onset of High Blood Pressure

Posted by Keilee-Rae Miller on June 1, 2015 at 9:27pm 0 Comments

Hello everyone. My name is Keilee and I just recently celebrated my 5yr post transplant. This last Sunday, 5/30 I went to the WE b/c my Bp was 183/120 with a resting pulse of 130. I was sweating, short of breath, right arm went numb. They treated me as I had a heart attack but after blood work came back, chest x-rays, chest CT Scan, and echocardiogram- they found no heart damage, no enzymes in my blood suggesting I had a heart attack, no lung infection, clots or aortic dissection. The hospital… Continue

Baby girl needs a Liver (toronto area) please help

Posted by Kelly Butts on May 27, 2015 at 5:54am 0 Comments

Its been a while since I've been on this site.  Almost 6 years since my donation, thankfully we are all doing amazing.  I am writing today to help spread the word for a friends 8 month old daughter who is in dire need of her own Liver Donation.  She lives in the Toronto area

 Every avenue we can use to help spread the word it crucial.  As a liver donor myself I know how hard it is to find suitable matches. 

Here is the link to her father’s facebook page and story.  If you or…

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http://optn.transplant.hrsa.gov/converge/resources/MeldPeldCalculator.asp?index=98

Posted by Matthew J Litkie on May 3, 2015 at 10:05pm 1 Comment

Link for: Calculator To determine your MELD score

Liver

25 or greater better chance

graft vs host from a liver transplant

Posted by Ralph N. Johnson on April 16, 2015 at 2:10pm 0 Comments

Hello, my name is Ralph N Johnson I just join this wonderful group of concern,loving,family and friends. My gift to life was on 7-12-14 liver transplant at Univ of Penn hospital Phila. In August I contacted (GVHD) from the liver transplant.August & September was spent fighting daily for my very life. Currently undetectable, My Dr. told me that I would be lucky to find as many people that it takes to play a hand of bridge that survived this disease. Can anyone point me in the direction to…

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A New Version of Transplant Hero is Available !

Posted by Jay Graham MD on April 8, 2015 at 12:18pm 0 Comments

You can download it here:



https://itunes.apple.com/us/app/transplant-hero-alarm-system/id969039026?mt=8



You will find many new amazing features in this version:

1. The ability to adjust your timing of medication better;

2. Email your immunosuppression regimen to whoever you want;

3. Heart,…

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Post Lung Transplant Clothing

Posted by Melissa Schaal on April 2, 2015 at 3:22pm 0 Comments

Does anyone have any ideas of what clothing and bras to find for after double lung transplant? I know I won't be able to wear a normal bra and wont be able to lift my arms to put on sports bras on. Help!!!

Melissa

No More Myfortic (Cellciept) March 30 2015

Posted by Matthew J Litkie on March 31, 2015 at 4:56pm 3 Comments

Almost 8 years out, & I only take a small amount of K5.

 Pre skin cancer every 2 months.

My Skin Dr asked if I could stop taking what ever kept giving me skin lesions.

The Lord Has Blessed Me, Beyond Imagination!

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels " Lol.. Oh boy that would be a refreshi…

Posted by Clare mcgee on March 25, 2015 at 1:39pm 0 Comments

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels "
Lol.. Oh boy that would be a refreshing change!! Continue

Forum

Is anyone taking the New Med. for $10,000 pr month?

Started by Matthew J Litkie in New to the Cafe? Introduce Yourself to the Community! on Monday. 0 Replies

The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores Continue

Tags: 2014-2015, Meds., New

Survived Graft vs Host after a liver transplant

Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! May 23. 0 Replies

Hello group, just a follow up to discussion concerning  graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.Continue

Graft vs Host From Liver Transplant

Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! Apr 13. 0 Replies

Hello, can anyone point me the direction, involving graft vs host after a liver transplant. Does anyone know of or heard of an individual that survived other than myself.Thank you.Continue

Anyone experience acute rejection past the 1 year mark with double lung transplant?

Started by Misty Mountain in Lung Transplants Mar 2. 0 Replies

My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back…Continue

Getting Fit While in Chronic Rejection of Lung Transplant

Started by Audrey Clark in Sports & Fitness Feb 16. 0 Replies

Hello, I am in chronic rejection of my 2nd double lung transplant. I go to pulmonary rehab twice a week but it doesn't seem like it is enough to get me fit. I get out of breath easily and it is likely that I will ever go to a gym. So I was wondering what you guys do to stay fit at home?Continue

Muscle Weakness and Joint Pain

Started by Terri Warren in Transplant Cafe Discussions - Archive & Discussion Forum Feb 5. 0 Replies

Hi - I am Terri and new to the café.  I found this site in my pursuit to find out if there was any connection between my liver transplant, that took place on 12.24.12 (best gift anyone can get!), and the muscle weakness and joint pain that I have been experiencing.I have been tested for a variety of medical reasons that showed no explanation, soooo, I truly believe my body is "basically addicted to  Prednisone!"  Once I was back up and moving again after the transplant I realized that something…Continue

averae wait time for liver transplant

Started by Cathy Mcferrin in New to the Cafe? Introduce Yourself to the Community!. Last reply by Matthew J Litkie Apr 1. 3 Replies

Thanks for the sweet welcome to this site!Im in the insurance  phase , testing which my insurance paid for about $30,00 worth of testing. Can  I ask how long did you have to wait once you were on  the list?I have hepatic encephalopathy and have been to hospital twice in less than 6 months.  The first visit I was pretty much out of my head. Finally adjusting  the lactulose and  x drug . Everyone I came in contact with was just rubbing me the wrong way.Second visit finally got the lactulose…Continue

Having a single Peg of Whiskey after liver transplant, will it kill me?

Started by Prem Dayal in Liver Transplants. Last reply by Prem Dayal Mar 3. 7 Replies

I underwent a liver transplant 4 years ago due to acute liver failure, My medications have reduced to just 1 mg of Prograf twice a day. Since the past 2 years I started travelling and living in various countries. Currently I am in Bogota, Colombia. I know this could have been severely fatal for me but I tried for the first time in my life Cocaine,LSD and Marijuana here, which I had never done in my life. For a small period of time I almost got addicted to Coke, when I pulled my self together…Continue

Tags: acute, failure, post, alcohol, transplant

Please Participate in My College Project :) I need your input!

Started by Brett Crowell in New to the Cafe? Introduce Yourself to the Community! Dec 1, 2014. 0 Replies

Hey Everyone!!I am 17 years post kidney transplant and have a great interest in developing new ways to increase the quality of life for all the people in the transplant community. Here is a little more information on the survey that I have created! I have compiled a survey via Survey Monkey for my honors project during my final year as an undergraduate. The content of the survey has to do with the self-concept of transplant patients, social support, illness intrusiveness, and adhering to the…Continue

Vomiting and Diarrhoea after being exposed to chemicals

Started by Frank Colangelo in New to the Cafe? Introduce Yourself to the Community!. Last reply by HDHONEY Nov 22, 2014. 1 Reply

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping…Continue

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    Is anyone taking the New Med. for $10,000 pr month?

    The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores See More
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    Terri Lynne commented on Catherine (Cathy)'s group Who's On Cellcept?
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    "Thanks for adding me, hope you're having a good day! Still itching but don't feel sick today."
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    Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
    "Philip, I like your train of thought and couldn't agree more. I've been spending my time at work or asleep and that takes my mind off all of that. I'm off today. The itching isn't as bad as it was the other day. Starla, my liver…"
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    Phillip Orosco replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
    "That itching....thats the worse...i feel for you. Been there with all that itching.  Nothing they gave me worked except morphine and they stopped it. The morphine was wonderful....no wonder its so addicting...LOL Iysed to stay up all night…"
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    Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
    "@Jan Ward...I'm ok, waiting till the 29th for labs. I've been itching like crazy but my last bili level was 0.9 so that wasn't high. My other liver numbers were but that. If I am still itching when I get labs, I guess I will tell my…"
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