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Holly Werlein ("holdol")(tc administrator) 
Nelson Freytes (founder)
 

Welcome to Transplant Cafe - The Gift of eLife!

Members

  • Jill Lemke
  • Charlene Wilson
  • JOSEPH WEST
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  • Sarah Copeland
  • Maxene (Mike's wife)
  • Anthony S
  • Melissa Winslow
  • Robert Ziegler
  • Wanda Deal
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  • Marnita Cummings
  • Justin Cassens
  • pHIL cARILLI
  • Andrea

Forum

Holdol

Ideas for doing a donor drive/speaking 9 Replies

Hi everyone, I'm in the process of trying to set up some speaking events to tell my story. I'm not exactly sure what groups I should go about contacting? Myself and another lady here in Michigan are…

Tagged: cafe, passion, travel, hospitals, transplant

Started by Holdol in Advocacy & Awareness. Last reply by Alan Anderson 2 hours ago.

Hari Narayan Sharma

Help needed to create slogan for my organisation 22 Replies

Hari Narayan Sharma January 11 at 5:29pm Dear TC Friends, This is the logo for my project which is designed by me. all the artwork is finalised by us. but name may be change if there is any same nam…

Started by Hari Narayan Sharma in General Discussion & Community. Last reply by Kathleen D. Cone 2 hours ago.

Wanda Deal

Insurance Company Problem 12 Replies

Hi all!  I got approved for double lung transplant in November, 2009 at the Mayo Clinic in Jacksonville Florida.  When Mayo Clinic requested coverage approval from my insurance company (blue cross Bl…

Started by Wanda Deal in New to the Cafe? Introduce Yourself to the Community!. Last reply by David Goodman 8 hours ago.

Chris dePaola

Team Transplant Cafe 3 Replies

So it seems we have some serious athletes from all around the country and the nice Triathlon Shirt I saw with the Donate Life and Transplant Care logo got me to thinking. Why not create an official,…

Started by Chris dePaola in Sports & Fitness. Last reply by Chris dePaola 9 hours ago.

Lon Coleman

Watch this video and learn why we do what we do 4 Replies

Here is a video interview that we did in Minneapolis prior to the Lifetime Fitness triathlon. Take a minute and see why we race and why TRI-for-Life is so important to us. http://www.darynkagan.com/h…

Started by Lon Coleman in Sports & Fitness. Last reply by Chris dePaola 9 hours ago.

gabesmina

info on generic prograf...

i have recently lost medicare... [3yrs post kidney] i am now switching to the generic form of the prograf and cellcept.  my doctor wants weekly blood tests to make sure all levels are good.  is there…

Started by gabesmina in Meds 11 hours ago.

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Groups

Blog Posts

Kim Jacques

Looking For A Roommate for the Games!!!!!!!!!!!

Hi All!



Registration is right around the corner (Monday!!! YAY!!!) and I'm looking for a roommate or two. I'm already set up to share a room with 1 friend (the totally adorable Lana Hall Powe--formerly of Team Indiana, now Team South & Central Texas). She and I are both lungers (me--with a heart thrown in) and will be joining the 30-39 age group this time.



We're looking for 1-2 more girls (sorry guys!) to share a room to REALLY save costs on the hotel. We're

… Continue

Posted by Kim Jacques on February 6, 2010 at 5:28pm

NKF U.S. Transplant Games

Registration for the 2010 NKF U.S. Transplant Games Opening Soon!

Registration for the 2010 National Kidney Foundation U.S. Transplant Games® will open on Monday, February 8, 2010 at 10AM EST. To register, log on to www.transp

… Continue

Posted by NKF U.S. Transplant Games on February 5, 2010 at 4:58pm

Heather Brenner

Turning 30!

Okay on Feb 14th 2010 I will be 30! I am so happy to be alive and doing well, my New liver is about 1year 5months give or take lol, I have finished my letter to the donor family and keeping my fingers crossed! god bless you all!

Posted by Heather Brenner on February 5, 2010 at 3:05pm — 5 Comments

Paula M. Rice

Paying it foreward

In the chat room I met a woman who, w/her husband, both TX, have a really good way of paying it foreward. When they have to go for hospital visits, they go to the ICU & talk to those who are waiting. How neat is that? Then I got to thinking, after my TX I used to bake giant heart healthy muffins for the staff & those in what we call "Step down", basically a recovery & waiting floor. Recovery from the latest pre- admit bout of whatever our organ problem hit us with. The waiting was

… Continue

Posted by Paula M. Rice on February 5, 2010 at 3:13am

Paul Anthony Worthington

Last night (03-02-2010) I saw the legend that are Rammstein, live at the NEC in Birmingham - Awesome performance

I had booked my ticket 7 months ago, as soon as they were released in fact - so desperate I was to be certain of getting a seat and a good seat too!

Yesterday was the big day, I had been building up to this moment since my ticket arrived through the mail roughly two weeks ago. I would say I was bursting with excitement but that would be an understatement!

Now I have been a massive fan of Rammstein since they released a song along with the Soundtrack album for the movie 'The Matrix' (Keanu Reev… Continue

Posted by Paul Anthony Worthington on February 4, 2010 at 12:46pm — 7 Comments

Terri Lynne Willis

Back on blood pressure meds

My bp went high when I got sick and when I got well, it never went down. Infact it was going so high that it was making me feel ill so I went back to Emory, out patient this time. They put me on Procardia XL as I requested. I took this many years ago after my transplant and tolerated it well. I am doing a little better with that. I go back to Emory on the 23rd for a check up.

Shortly after getting out of the hospital, I got a hair cut. This picture was taken last night.… Continue

Posted by Terri Lynne Willis on February 3, 2010 at 4:30am — 1 Comment

Lee Rivera

remembering the day I found out I was really ill

I was reading the blogs of fellow transplanted friends. One of my friend had a lung transplant and the other had both lungs transplanted. Reading them brings back many memories..

I remember throwing up blood and the doctor not letting me drive to the hospital. My heart was racing and my blood pressure was very low. We were talking about how I had driven to his office and how he would not let me leave on my own. I called a friend to come and take me to the hospital. The doctor was about to call… Continue

Posted by Lee Rivera on February 1, 2010 at 11:27pm — 1 Comment

Cristina Cagliari

Dia Mundial Doenças Raras



No próximo dia 28 de fevereiro será celebrado o Dia Mundial das Doenças
Raras.

Com o objetivo de divulgar as doenças raras, a Câmara Municipal de São
Paulo, o Grupo de Estudos de Doenças Raras e a representação da GEISER no
Brasil propuseram a “1ª Caminhada de Apoio ao Portador de Doenças Raras”.… Continue

Posted by Cristina Cagliari on February 1, 2010 at 4:11pm

Laura

Being relisted

I just got back from another visit from the hospital (I had LOTS of pain and my 2nd tube was blocked). When my team came to see me in the morning (Jan 29th) the Dr. said that he was going to go ahead and relist me...it would be the best. I am constatly having PTC tube problems and bile duct surgery isn't an option in my case. Relisting me is "the next step" as I am, according to him, still young and have a life ahead of me though, if I was older (ie. 70s) he would leave the tubes in.
I am not su… Continue

Posted by Laura on January 31, 2010 at 6:00pm — 3 Comments

Paul Anthony Worthington

Another milestone reached and suddenly feeling very old!

It was my birthday on the 28th January, not just any birthday, but the dreaded big 30. I had been dreading turning 30 for quite a while now. I don't know about those of you who have already passed this milestone, but I suddenly feel like that kid in me is no longer around (well, not as much). I am terrified I now have to start acting my age, no more partying, no more fun in the snow, now more trips to the fair....

Yes I know, I'm just being melodramatic (another side-effect of turning 30 perhap… Continue

Posted by Paul Anthony Worthington on January 31, 2010 at 12:57pm — 7 Comments

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Latest Activity

Karen Weddick commented on Holdol's group 'Prayer & Blessings'
Thank you Paula, Peggy and Lili for your lovely compliments and I'm so glad you all liked and enjoyed it. I too would love to frame it.
9 minutes ago
Karen Weddick left a comment for Jill Lemke
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Jill Lemke is now a member of TransplantCafe.com - The Gift of eLife!
Welcome Them!
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Paula M. Rice left a comment for Jay Robare
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Paula M. Rice left a comment for Tolikas
2 hours ago
Alan Anderson replied to Holdol's discussion 'Ideas for doing a donor drive/speaking'
Holdol, Try contacting your transplant team where you had your transplant or the organ procurement program in your area. I think it is Lifebanc of Ohio, my brother works for them. They are always looking for people to tell their stories. I did some…
2 hours ago
Kathleen D. Cone replied to Hari Narayan Sharma's discussion 'Help needed to create slogan for my organisation'
Getting a Clean Start in Life
2 hours ago

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