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Kidney News: Will Eveyrone Help Us Fundraise?

Posted by Caring 4 Carrie on April 13, 2014 at 8:37pm 0 Comments

Our Caring 4 Carrie Walk Team, will be walking on Saturday, May 31st, at Turner Field, Atlanta, GA. We've raised over $1,200!

Please consider to order our official Caring 4 Carrie t-shirts. All our proceeds will be donated to the National Kidney Foundation. Our website is: www.booster.com/caring4carrie…

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Prograf hair thinning.

Posted by Clare mcgee on April 8, 2014 at 12:58pm 8 Comments

So the hair loss/thinning thing, does it ever subside?? Been year & a half now. I have recognised I'm not going to be a lucky participant in this side effect as some that get it is Temporary
For them. But does it get any better? & the scalp pain that accompanies it?
Anyone?? Pls
Clare x

How Can Dialysis Patients Pay For Dialysis

Posted by Caring 4 Carrie on April 6, 2014 at 5:19pm 0 Comments

The costs of dialysis and kidney transplant are high, but most kidney patients are able to get some form of insurance. Here's a few options: Medicaid, Medicare, Private Insurance and Medigap.

Nugget: Where To Start? Your dialysis social worker or transplant coordinator will provide your insurance options for treatment.

Post transplant five years this month

Posted by Christie N Ramos on April 2, 2014 at 10:23pm 1 Comment

I had a renal transplant on April 19th 2009. I have recently been having some inflammation and aching on the right side of my body (side of renal transplant). It does cause some trouble sleeping and it hurts more if I sleep on the same side. I saw my doctor and he does not know what would cause this symptoms without a fever. I do have a infection but it is not the cause of the inflammation and aching. Did anyone ever have similar symptoms?

What's The Internal Function Of The Kidney?

Posted by Caring 4 Carrie on March 23, 2014 at 7:23pm 0 Comments

Inside the kidney are millions of nephrons. Mainly, kidney diseases assault the nephrons due to which they loss their filtering capacity. When the kidneys lose their ability to filter (cleanse the blood), dangerous toxins accumulate in the bloodstream. Nugget: A symptom is the inability to urinate,

Should Children With Kidney Disease Do Sports?

Posted by Caring 4 Carrie on March 16, 2014 at 8:59pm 0 Comments

According to The British Kidney Patient Association (BKPA), they suggest that sport and exercise is great for children with kidney disease. Also, to encourage your child to do all the activities their friends do but monitor contact sports if recent kidney surgery.

Hard to Believe

Posted by Morgan McCalvin on March 14, 2014 at 7:36am 1 Comment

It's been 3 1/2 years since my first pancreas transplant,1 1/2 since my second pancreas transplant, and I'm currently waiting on my third pancreas transplant. When I look back on the past 3 1/2 years and the struggles I've been through I learned to live my life to the fullest and go for my dream. I'll be graduating with my first degree in college in May being the first in my family to graduate from college and then in December with I'll graduate again with  ab BS in Health Promotion. I can…

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Blue Circle~ Universal Diabetes symbol

Posted by Caring 4 Carrie on March 9, 2014 at 5:40am 0 Comments

The Blue Circle is the universal symbol for Diabetes. Exercise is safe and highly recommended for most people with Type 2 Diabetes, including those with complications.…

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Help Us Support Kidney Awareness- Order a Caring 4 Carrie t-shirt

Posted by Caring 4 Carrie on March 9, 2014 at 5:37am 0 Comments

Kidney News: We're Kindly Asking Everyone To Help Us Promote Kidney Awareness. Please visit: www.booster.com/caring4carrie

Kidney Donations Saves Lives!

Posted by Caring 4 Carrie on March 2, 2014 at 9:19pm 0 Comments

1 donor= 8 lives saved. To learn more about being an organ donor, please visit: www.organdonor.gov

Forum

Taking wheatgrass powder

Started by Eassouad in Food & Nutrition. Last reply by Eassouad Mar 30. 3 Replies

HiI am a renal transplant patient for a long time , I take prograf cellcept and prezolon . Me and husband want to have a baby so much ! But my fsh is high and I was thinking of taking wheatgrass powder but worried about interaction with my immunosuppressive meds , has anyone has any information about taking it or took it and have any information ?Continue

Tags: Wheatgrass

Just wondering....

Started by Rob Adams in New to the Cafe? Introduce Yourself to the Community! Mar 10. 0 Replies

Hi all. I'm new here and to the transplant world. I knew it was coming, but it kinda snuck up on me. I have my first appointment next Monday to meet everyone at Emory in Atlanta.I was wondering how many here had a kidney and pancreas transplant. Also, how long was your wait? I've spoken to two others and they had theirs after being on the list for less than a month. Surely that is unusually short. Also, is it odd that I am excited about having a transplant? I'm really not nervous at all. Thanks…Continue

Post transplant blues

Started by Phil Keyes in Meds. Last reply by Phil Keyes Feb 19. 4 Replies

Hi,I am glad I found this site.  I hope that I may be of service to others who have received  or are about to face this life changing gift.  I can even advise care givers to a degree.   You'll find me open to any discussion so please feel free to contact me. I got my new liver just over a year ago.  I've healed very well and other than Prograf side effects, I'm doing very well.  My surgeon even rated me " best in show"  or something like that. I consider the minor hair loss, repeated vision…Continue

Tags: anxiety, confusion, depression, prograf, effects

Newbie Here

Started by dante 1971 in New to the Cafe? Introduce Yourself to the Community!. Last reply by wendy michelle menard Feb 25. 6 Replies

Hi there - I'm Mike and I'm pre-liver transplant.  Diagnosed with Cirrhosis in June of 2013.  Currently on two waiting lists - Northwestern Memorial in Chi-town, and Froedtert in Millwaukee.  I've been listed for about six months, currently with a MELD of 125.  Had one liver offer (the day after listing here in Chicago), which did not pan out. Anyway, seems likes a great site/community.MikeContinue

Wanting to save my Momma.

Started by Faith French in New to the Cafe? Introduce Yourself to the Community!. Last reply by HDHONEY Feb 11. 2 Replies

Hi guys, as I'm sure you've guessed, I'm pretty new here. I'm new to the whole idea of transplants in general. Growing up, I knew my mother had HEP C, but I never realized how bad it was. She always seemed fine. Now that I'm older, and so is she, her liver is starting to0 get worse. She has been diagnosed with stage 4 Liver Disease, HEP C, and Cirrhosis. Our blood types match. I am 23 and healthy. Though I keep reading about how I need to be 'big enough' to donate which has me worried. I weigh…Continue

Blue Cross Blue Shield FedBlue

Started by Joe in Meds Feb 4. 0 Replies

I have been informed by my wife's insurance BCBS FedBlue, that they will no longer cover my Prograf if it is filled by our local pharmacy.  FedBlue will force me to use CVS mail order to continue coverage. Has anyone experienced a similar situation? Continue

Tags: FEDBLUE, Shield, Cross, Blue

vegetarian issue

Started by ray c. in New to the Cafe? Introduce Yourself to the Community!. Last reply by Bobbiejo Winfrey Jan 27. 1 Reply

Going on 10 years as a kidney pancreas transplantee and wondered if anyone knew of any problems eating brewers yeast or tempe as part of their regular diet. Vegetarian ever since getting gastroparesis, 20 years ago, since meat is so hard to digest, I have remained veggie since my transplanted kidney may has work less digesting meat protein. . Thanks, rContinue

Bile duct leakage

Started by Shane Sweeney in General Discussion & Community. Last reply by Laura Jan 30. 3 Replies

I am back in hospital 3 months after liver transplant with blockage in my bile ducts. Earlier I had had a stent inserted because of the narrowing of the veins. Anyone else had similar issues and what were your outcomes?

Retransplant and Sirolimus Rescue Therapy

Started by Rick Darnell in Living Donors, Donor Families & Friends. Last reply by LeeAnn Jan 15. 2 Replies

Our daughter who just turned 20 was diagnosed with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital.  After consulting with the pediatric specialists at the children’s hospital, the decision was made to explore the possibility of transplant in the future.  We were referred to the adult unit because there is no hospital in our state that handles pediatric liver transplants,…Continue

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    Kidney News: Will Eveyrone Help Us Fundraise?

    Our Caring 4 Carrie Walk Team, will be walking on Saturday, May 31st, at Turner Field, Atlanta, GA. We've raised over $1,200!Please consider to order our official Caring 4 Carrie t-shirts. All our proceeds will be donated to the National Kidney Foundation. Our website is: www.booster.com/caring4carrieSee More
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