My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated. Thank you.
Wow! I can't believe all that has happened since I last signed into this site. After already having been through heart transplants with my girls (now adults), my ten year old grandson needs one. He was diagnosed with advanced heart failure and airlifted to University Hospitals on April 16th. It was just heartbreaking to do this yet again. There are no words. As horrible as it was to watch him go through all of this, I am so grateful he is still with us today. He now has an LVAD and is able…Continue
My coordinator emailed me a copy of what the biopsy report said.
LIVER, ALLOGRAFT, CORE NEEDLE BIOPSY:
· CENTRAL PERIVENULITIS AND FOCAL DUCTITIS, COMPATIBLE WITH ACUTE CELLULAR REJECTION, FAVOR MILD.
· PORTAL FIBROSIS.
It basically says have some inflammation (already knew this from last biopsy), mild rejection and portal fibrosis. I've heard of fibrosis from other liver patients but not totally clear on what it is. Starla is in good hands with Dr. P…Continue
I’m Dennis Chavis.
Thankful, grateful, of the gift I received. Blessed with twelve years. I find myself needing lots of info! Liver transplant on October 4 2003, 3 months later and I’m back at work and things or great!
Today, I’m sick again. I stand at another crossroads, what to do? Lost my job and can’t…Continue
Its been a while since I've been on this site. Almost 6 years since my donation, thankfully we are all doing amazing. I am writing today to help spread the word for a friends 8 month old daughter who is in dire need of her own Liver Donation. She lives in the Toronto area
Every avenue we can use to help spread the word it crucial. As a liver donor myself I know how hard it is to find suitable matches.
Here is the link to her father’s facebook page and story. If you or…Continue
Link for: Calculator To determine your MELD score
25 or greater better chance
Hello, my name is Ralph N Johnson I just join this wonderful group of concern,loving,family and friends. My gift to life was on 7-12-14 liver transplant at Univ of Penn hospital Phila. In August I contacted (GVHD) from the liver transplant.August & September was spent fighting daily for my very life. Currently undetectable, My Dr. told me that I would be lucky to find as many people that it takes to play a hand of bridge that survived this disease. Can anyone point me in the direction to…Continue
Started by Bob Abendroth in New to the Cafe? Introduce Yourself to the Community! Aug 14. 0 Replies 0 Likes
Lung transplant, my story.Before I begin, I would first like to thank the many people, without whom this may have never happened. To the doctors and nurses and everyone else at Johns Hopkins who have been absolutely amazing. To countless friends and relatives, I can't begin to name them all or to thank them all personally for all of their support and prayer. I feel that everyone has gone through this together with me, and John as well. To my immediate family, my sons and daughter-in-law who…Continue
Started by Janet Hart in New to the Cafe? Introduce Yourself to the Community!. Last reply by Janet Hart Aug 5. 2 Replies 0 Likes
My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated.Thank you.Continue
Started by Kathy Nickell-Nuss in New to the Cafe? Introduce Yourself to the Community! Jul 25. 0 Replies 0 Likes
I have had two liver transplants, one in 2012 and one in 2013. I have been in chronic rejection for 2 years. My liver enzymes are trending downward which is great, bur I live with horrible itching daily. Has anyone experienced this and if so, how or what can I use to stop the itch? The itching is mostly in my feet and hands, but sometimes all over my body. It's not really the skin that itches, It's under the skin! It kind of feels like the itching is in my veins....running through the…Continue
Started by Matthew J Litkie in New to the Cafe? Introduce Yourself to the Community! Jun 29. 0 Replies 1 Like
The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores Continue
Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! May 23. 0 Replies 0 Likes
Hello group, just a follow up to discussion concerning graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.Continue
Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! Apr 13. 0 Replies 1 Like
Hello, can anyone point me the direction, involving graft vs host after a liver transplant. Does anyone know of or heard of an individual that survived other than myself.Thank you.Continue
My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back…Continue
Hello, I am in chronic rejection of my 2nd double lung transplant. I go to pulmonary rehab twice a week but it doesn't seem like it is enough to get me fit. I get out of breath easily and it is likely that I will ever go to a gym. So I was wondering what you guys do to stay fit at home?Continue
Started by Terri Warren in Transplant Cafe Discussions - Archive & Discussion Forum Feb 5. 0 Replies 0 Likes
Hi - I am Terri and new to the café. I found this site in my pursuit to find out if there was any connection between my liver transplant, that took place on 12.24.12 (best gift anyone can get!), and the muscle weakness and joint pain that I have been experiencing.I have been tested for a variety of medical reasons that showed no explanation, soooo, I truly believe my body is "basically addicted to Prednisone!" Once I was back up and moving again after the transplant I realized that something…Continue
Started by Cathy Mcferrin in New to the Cafe? Introduce Yourself to the Community!. Last reply by Matthew J Litkie Apr 1. 3 Replies 0 Likes
Thanks for the sweet welcome to this site!Im in the insurance phase , testing which my insurance paid for about $30,00 worth of testing. Can I ask how long did you have to wait once you were on the list?I have hepatic encephalopathy and have been to hospital twice in less than 6 months. The first visit I was pretty much out of my head. Finally adjusting the lactulose and x drug . Everyone I came in contact with was just rubbing me the wrong way.Second visit finally got the lactulose…Continue
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