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The Month Of September is 'National Hispanic Heritage Month.'

Posted by Caring 4 Carrie on September 21, 2014 at 7:48pm 0 Comments

According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.

How Does The Kidney Filter The Body?

Posted by Caring 4 Carrie on September 14, 2014 at 8:54pm 0 Comments

According to Yahoo, the kidneys perform their life-sustaining job of filtering and returning to the bloodstream about 200 quarts of fluid every 24 hours. About two quarts are removed from the body in the form of urine, and about 198 quarts are recovered. The urine we excrete has been stored in the bladder for anywhere from 1 to 8 hours.

Life is short play HARD!

Posted by steve sullivan on September 8, 2014 at 10:20am 0 Comments

Dec. 23, 2004

By Adam Lucas

Steve Sullivan wants you to deliver a message. He is not always the best at expressing his feelings, isn't really the Hallmark type, but he urgently wants to tell Carolina's head football coach something.

"If you see Coach Bunting, could you tell him how much he means to me?" Steve Sullivan says.

They make an unlikely pair. Sullivan is in frail health, the result of a pair of kidney transplants. He is currently…

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Life is short play HARD!

Posted by steve sullivan on September 8, 2014 at 10:16am 0 Comments

IT'S MORE THAN A GAME TO STEVE

Thad Williamson- Inside Carolina…
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Kidney Donation Saves Lives

Posted by Caring 4 Carrie on September 7, 2014 at 9:00pm 0 Comments

1 donor= 9 lives saved. To learn more about organ donation, please visit, organdonor.gov

Should Diabetics Be Concerned With Their Total Body Care? Absolutely!

Posted by Caring 4 Carrie on August 31, 2014 at 8:18pm 0 Comments

According to WebMD, for those with Type II Diabetes, if blood sugar is uncontrolled, blood vessels & nerve damage occurs in the body. However, taking special care of every part of your body to avoid serious complications is just as critical. Nugget: Exam= Prevention.



Here's areas of focus for Diabetic Care:



1) Foot infections

2) Chronic foot infections

3) Gum disease and tooth loss

4) Vision problems

5) Heart…

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What Can You Eat If You Have Diabetes?

Posted by Caring 4 Carrie on August 24, 2014 at 7:03pm 0 Comments

According to WebMD, if you're Diabetic, the goal is to monitor your carbs daily. A person with Diabetes can have snacks if their blood sugar gets low between meals. Also, desserts can be eaten but save for special occasions and have a scoop or thin slice. Sweet tooth? -consider having a piece of fruit

Does 'Race' Matter For Organ Donation- Should This Be A Factor?

Posted by Caring 4 Carrie on August 17, 2014 at 7:28pm 0 Comments

According to How Stuff Works, minorities are extremely encouraged to register to become an organ donor. Meaning, organs are matched by factors, including blood and tissue typing, which can vary by race. However, patients are more likely to find matches among donors of their same race or ethnicity.

5th Annivasary

Posted by Peter james goodman on August 15, 2014 at 8:34am 3 Comments

Hello Tx Family!!!!

DON'T HAVE A FAMILY ---TO SHARE MY NEWS...  WELL, IT HAS BEEN 5 YEARS AGO TODAY SINCE MY GIFT OF LIFE.  AS YOU KNOW MY SUSIE HAS BEEN GONE FOR 2 YEARS NOW--7-31-12..She was the only family I had other then all of you. It has been a struggle for all of us but I am convinced God still needs me here.  Love and pray for all of us.  Peace and good journey.  Love Pete~

Forum

Cardiac biopsy - how often?

Started by Parent of B in New to the Cafe? Introduce Yourself to the Community! on Friday. 0 Replies

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical…Continue

Tags: transplant, frequency, heart, protocol, biopsy

Hello, I am new here

Started by Stefan in New to the Cafe? Introduce Yourself to the Community!. Last reply by Ramona on Saturday. 1 Reply

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias,…Continue

Surgery after transplant

Started by Jeff Clardy in New to the Cafe? Introduce Yourself to the Community! on Wednesday. 0 Replies

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at…Continue

Painful mouth tissues - not just thrush this time

Started by Suzanne Giacherio in New to the Cafe? Introduce Yourself to the Community!. Last reply by Dawn Chick Aug 21. 5 Replies

  Hello All! I am Suzanne and am medically "well" since the liver transplant in February 2010. I so can relate to the majority of everyone's issues post transplant and most likely medication related side effects. Lately my biggest problem has been my sore mouth tissue - as my dentist call it "dry tissue". This is the absolute worst it has ever been! I have the liquid Nystatin for the thrush but it seems to not be helping at all. Started using coconut oil (since the pulled all my teeth…Continue

Whey Protein Post Transplant

Started by Tai in Food & Nutrition. Last reply by Walter s Jul 13. 1 Reply

I've been working out with weights at the gym.  I asked my clinic if I can take Whey Protein post workout.  They gave me the OK to take it.  But I was just wondering if anybody else on here take Whey Protein post workout and if it changed their medication lvl's (ie. cyclosporine or cellcept). Continue

Dianna's Journey

Started by Dianna Cornell in Kidney / Pancreas Transplants Jul 1. 0 Replies

Hello everyone! I just started a blog last week. I would love for you to come visit. It is filled with short stories, some funny, some not. But I am sure some may relate. Blessing, DiannaContinue

Getting a new kidney....very nervous

Started by Megan Chapman in Kidney / Pancreas Transplants. Last reply by Sam Taylor Jul 3. 1 Reply

Hi everyone my name is Megan and I just wanted to ask and see if anyone has had a transplant lately? What was it like? where you scared? Did it take long for you to recover you know the usual questions when getting ready to have a transplant.  I had my transplant 21 years ago when I was only 1 and a half so I don't remember anything.  Now I will be having another kidney transplant in the near future and I am very nervous about it.  Anyone's story or experience would be Fantastic.  Thank you!!!…Continue

Ayahuasca spiritual ceremony

Started by todd silverman in Spirituality & Transplantation Jun 19. 0 Replies

I'm wondering if anyone has participated in the spiritual ceremony called Ayahuasca?  The ceremony originated in Peru and provides Shamans for the safety of participants and their consumption of an an ancient root concoction.Continue

Ayahuasca spiritual ceremony

Started by todd silverman in New to the Cafe? Introduce Yourself to the Community! Jun 19. 0 Replies

I'm wondering if anyone has participated in the spiritual ceremony called Ayahuasca?  The ceremony originated in Peru and provides Shamans for the safety of participants and their consumption of an an ancient root concoction.Continue

Liverversary

Started by Carolyn Zeigler Adams in New to the Cafe? Introduce Yourself to the Community!. Last reply by Bobbiejo Winfrey Jun 9. 1 Reply

Monday, June 9th 2014, is my one year Liverversary! I can't believe it's been a year! I am so excited!

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    Latest Activity

    Caring 4 Carrie posted a status
    "Someone's Story: This is Micah. He's seeking a kidney donor. Kindly consider to visit his Facebook page. http://j.mp/XJdwdO"
    21 hours ago
    Caring 4 Carrie posted a blog post

    The Month Of September is 'National Hispanic Heritage Month.'

    According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
    21 hours ago
    Ramona replied to Stefan's discussion Hello, I am new here
    "Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
    Saturday
    Parent of B posted a discussion

    Cardiac biopsy - how often?

    Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
    Friday
    Stefan posted a discussion

    Hello, I am new here

    Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
    Friday
    Stefan liked Stefan's profile
    Friday
    Stefan left a comment for Stefan
    "My wife is a double lung transplant of 15 years"
    Friday
    Stefan is now a member of TransplantCafe.com - The Gift of eLife!
    Thursday
    Jeff Clardy posted a discussion

    Surgery after transplant

    I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
    Wednesday
    Karen Harrill replied to Phil Keyes's discussion Post transplant blues
    "Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
    Sep 16
    Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
    "Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
    Sep 16
    Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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    My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

    I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
    Sep 16
    Karen Harrill joined TransplantCafe.com's group
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    Acute Liver Failure Transplants

    A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
    Sep 16
    Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
    Sep 16
    Lili Feldman commented on Lili Feldman's group The Funny Bone
    "Makes sense to me. Good one David."
    Sep 15
    Ali Barton and Karen Weddick are now friends
    Sep 15

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