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A. Front replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
My hepatologist was concerned more with biopsy results than viral loads. When this summer it went from stage 1 to 2, he suggested I start treatment.
I'm currently doing interferon/ribavarin tx, und since week 4.
As genotype 2, I'll do 24…
Stu L replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
I was surprised to learn how high your AFP resuts were the highest mine ever got was 39 pre transplant and since they they have varied from 5-11 almost normal. I always get concerned watching them but my doc confirmed like these discussions…
Stu L replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
I am impressed by the courage you all show in facing the challenges we all face. I feel fortunate to have had a rather easy time of it., My two chembos kept my nodules small while I waited for a transplant, eventually I allowed my…
michael kelly commented on Lili Feldman's group 'The Funny Bone'
"I would like a Long Island Duck!" The kid runs in the back and brings out a duck. She immediately sticks her index finger up the duck's tuchas, and twirls it. She then looks at the kid and yells, "This is a New…
Lisette Rivera left a comment for Lisette Rivera
Thank You for the Happy Birthday Sue...Appreciate it
Almost 15 months With My Kidney/Pancreas Transplant
Hi AllI Haven't been to Transplant Cafe In a really long time. When I did come back they where off and I couldn't believe it. So I'm Glad They're back. Anyhow I had a Kidney/Pancrease Transplant on 10/31/2010...It was a bumpy road at first with My Pancreas than for whatever reason my creatinine levels where everywhere and no explanations why biopsy was clear and everything was ok...Lots of haggling with my Dr about prednisone and I'm off of it. Currently on 500mg 2x a day of Mycophenolate…See More
Blog post by Lisette Rivera
Just released my book, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation"
I just released a book titled, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation". I wanted to share it with all of you as we all have a unique transplant story. You can check the book out on my website at www.dbonner.com, read the first chapter, and purchase the book if you want. If you put in the promotion code, "cafe", you will receive a 10% discount on the book. Thanks to everyone in advance for your support! Best wishes and…See More
Blog post by Dan Bonner
David Goodman commented on Lili Feldman's group 'The Funny Bone'
Glad to be of service...
David Goodman commented on Lili Feldman's group 'The Funny Bone'
An old man walks into the barbershop for a shave and a haircut, but he tells the old barber he can't get all his whiskers off because his cheeks are wrinkled from age.The barber gets a little wooden ball from a cup on the shelf and tells him to…
My Book, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation" has been released!
Hi Everyone, I just released a book titled, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation". I wanted to share it with all of you as we all have a unique transplant story. You can check the book out on my website at www.dbonner.com, read the first chapter, and purchase the book if you want. If you put in the promotion code, "cafe", you will receive a 10% discount on the book. Thanks to everyone in advance for your…See More
Discussion posted by Dan Bonner
Tom Russell replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
Hi Connie and Jan:
So far no cancer Jan. I hadn't heard it in terms of regrowing. Hope that's it. The doc mentioned maybe doing the Nexavar again. I hope not. That was hard. No picking and grinning for awhile. She doesn't know if…
Jan Ward replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
Hey Tom!
Nice to see you. A lot of folks don't realize that the AFPs are related simply to Liver Cells growing - or regrowing - and that can have to do with repairs as well as overgrowth (i.e. HCC). Hey hey no more cancer today, eh?
Jan
Connie Austin replied to Stu L's discussion 'HEP C Treatment' in the group Liver Transplants
Tom, I'd be concerned, too, with an AFP that high. Was the MRI in Nov. only of the abdomen? You could possibly have a tumor elsewhere, such as the chest or bones. I was told that chemoembolization shrinks but does not…
Blog Posts
Almost 15 months With My Kidney/Pancreas Transplant
Posted by Lisette Rivera on January 27, 2012 at 3:29pm 0 Comments 0 Likes
Hi All
I Haven't been to Transplant Cafe In a really long time. When I did come back they where off and I couldn't believe it. So I'm Glad They're back. Anyhow I had a Kidney/Pancrease Transplant on 10/31/2010...It was a bumpy road at first with My Pancreas than for whatever reason my creatinine levels where everywhere and no explanations why biopsy was clear and everything was ok...Lots of haggling with my Dr about prednisone and I'm off of it. Currently on 500mg 2x a day of…
Continue
Just released my book, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation"
Posted by Dan Bonner on January 27, 2012 at 2:48pm 0 Comments 0 Likes
I just released a book titled, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation". I wanted to share it with all of you as we all have a unique transplant story. You can check the book out on my website at www.dbonner.com, read the first chapter, and purchase the book if you want. If you put in the promotion code, "cafe", you will receive a 10% discount on the book.
Thanks to everyone in advance for your… Continue
Thanks to everyone in advance for your… Continue
HelpHOPELive - Our Mission
Posted by HelpHOPELive on January 27, 2012 at 7:30am 0 Comments 0 Likes
Sorry for not posting for such a long time...
Posted by Paul Anthony Worthington on January 25, 2012 at 11:47am 0 Comments 0 Likes
Just a quick update: I've went for my checkup at Papworth on Wednesday and the results weren't the best. Fluid is still a problem and despite being on maximum diuretics I've got to increase the Metolozone and spread out the Amiloride.
I've also been booked in for an Ablation to try and stem the Atrial Flutter and hopefully improve the heart function (thus helping with the fluid problem).
Failing that they may wish to try and repair the failing valve, the main cause of my fluid…
ContinueForum
My Book, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation" has been released!
Started by Dan Bonner in General Discussion & Community 7 hours ago. 0 Replies 0 Likes
Hi Everyone, I just released a book titled, "Gifted: My Extraordinary Journey Through Illness and Liver Transplantation". I wanted to share it with all of you as we all have a unique transplant story. You can check the book out on my website at www.dbonner.com, read the first chapter, and purchase the book if you want. If you put in the promotion code, "cafe", you will receive a 10% discount on the book. Thanks to everyone in advance for your…Continue
liver transplant
Started by Laura Brown in Liver Transplants. Last reply by Connie Austin yesterday. 5 Replies 0 Likes
hi everyone! i had my gallbladder out about15 years ago. can i still get a transplant?what do they do? thanks lauraContinue
waiting
Started by Kim Teston in Liver Transplants. Last reply by Connie Austin yesterday. 14 Replies 0 Likes
So, we just found out my hubby is number two on the o+ transplant list for a liver at Piedmont in Atlanta. Can and how do I find out where he is in the region? What should we expext next? What should I have packed? Any suggestions? Hints? anything?
Voriconazole ( VFEND )
Started by Darlene Tanner in New to the Cafe? Introduce Yourself to the Community! on Wednesday. 0 Replies 0 Likes
Has anyone experienced numbness of the feet taking VFEND? I told my TX team and he took me off, VFEND, 3 months ago, saying that would cause the numbness. But I am still numb in some parts of my feet. How long will this last? My feet also stay cold. Continue
Welcome Back TransplantCafe!
Started by Inspiring in New to the Cafe? Introduce Yourself to the Community!. Last reply by Inspiring on Wednesday. 1 Reply 0 Likes
It's nice to see you are up and running once again. Sometimes we as a people do not recognize how good things are until we don't have them anymore. As the saying goes, "one never misses the water 'till the well runs dry. "Continue
What about Tryptophan?
Started by Matthew J Litkie in New to the Cafe? Introduce Yourself to the Community!. Last reply by Connie Austin on Wednesday. 10 Replies 0 Likes
I wonder if we can even take this? It used to help me sleep. Continue
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World Kidney Day
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One Love...
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Events
December 26
Monday
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Fundrasier Help for Transplant
December 26, 2011 at 6pm to December 25, 2012 at 7pm – Transplant.org
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April 28
Saturday
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6th Annual Race '4' Life Scavenger Hunt
April 28, 2012 from 12pm to 9pm – The Rose Garden
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July 28
Saturday
top members this week:
| 1 |
Stu LNewtown, CT, United States |
| 2 |
Mary CoyWest Jefferson, OH, United States |
| 3 |
MarinaSan Francisco, CA, United States |
| 4 |
Darren SussmanOrlando, FL, United States |
| 5 |
Dan BonnerBayonne, NJ, United States |
| 6 |
Taylor GivensCentreville, VA, United States |
| 7 |
HelpHOPELiveWayne, PA, United States |
| 8 |
Nancy L ShaulNanticoke, PA, United States |
| 9 |
InspiringBoston, MA, Barbados |
| 10 |
Darlene TannerNewcastle, OK, United States |
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