I haven't posted since this started but still in rejection. September 11th, it will be 3 months since this started. It kind of was getting better so doc lowered prednisone to 15mg and let me go a month till next labs. I had those labs August 17th and they went up, a lot. He raised my Prednisone to 40mg for 7 days, 30mg for another 7 days. I am almost done with the 30mg and it will go back to 20mg. I am getting labs again Thursday. I've pretty much been getting labs every two weeks since this…Continue
My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated. Thank you.
Wow! I can't believe all that has happened since I last signed into this site. After already having been through heart transplants with my girls (now adults), my ten year old grandson needs one. He was diagnosed with advanced heart failure and airlifted to University Hospitals on April 16th. It was just heartbreaking to do this yet again. There are no words. As horrible as it was to watch him go through all of this, I am so grateful he is still with us today. He now has an LVAD and is able…Continue
Because today marks the tenth anniversary of my multivisceral transplant in which I got a new spleen, liver, pancreas, stomach, small and large intestine, I want to:T: ThankE: EveryN: NameT: ThatE: EncouragedN: Now!!This forum here has been a part of my journey since my transplant, and I feel this is a good day to express my gratitude to everyone here. For me:T: TransplantsR: RecallA: AndN: NameS: SpecialP: PeopleL: LovingA: Another'sN: NeedsT: Thoroughly.This refers not only to the donor and…Continue
Started by ATUL YADAV in New to the Cafe? Introduce Yourself to the Community! Sep 3. 0 Replies 0 Likes
What are the probable reasons behind rejection of transplanted kidney after 5 and half years ?Continue
Started by Bob Abendroth in New to the Cafe? Introduce Yourself to the Community! Aug 14. 0 Replies 0 Likes
Lung transplant, my story.Before I begin, I would first like to thank the many people, without whom this may have never happened. To the doctors and nurses and everyone else at Johns Hopkins who have been absolutely amazing. To countless friends and relatives, I can't begin to name them all or to thank them all personally for all of their support and prayer. I feel that everyone has gone through this together with me, and John as well. To my immediate family, my sons and daughter-in-law who…Continue
Started by Janet Hart in New to the Cafe? Introduce Yourself to the Community!. Last reply by Janet Hart Aug 5. 2 Replies 0 Likes
My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated.Thank you.Continue
Started by Kathy Nickell-Nuss in New to the Cafe? Introduce Yourself to the Community!. Last reply by Jim Woods Oct 10. 2 Replies 0 Likes
I have had two liver transplants, one in 2012 and one in 2013. I have been in chronic rejection for 2 years. My liver enzymes are trending downward which is great, bur I live with horrible itching daily. Has anyone experienced this and if so, how or what can I use to stop the itch? The itching is mostly in my feet and hands, but sometimes all over my body. It's not really the skin that itches, It's under the skin! It kind of feels like the itching is in my veins....running through the…Continue
Started by Matthew J Litkie in New to the Cafe? Introduce Yourself to the Community! Jun 29. 0 Replies 1 Like
The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores Continue
Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! May 23. 0 Replies 0 Likes
Hello group, just a follow up to discussion concerning graft vs Host after a liver transplant. Wondering if anyone had additional information concerning this discussion. Know or anyone? Heard about it?...Anyone please..thank you.Continue
Started by Ralph N. Johnson in New to the Cafe? Introduce Yourself to the Community! Apr 13. 0 Replies 1 Like
Hello, can anyone point me the direction, involving graft vs host after a liver transplant. Does anyone know of or heard of an individual that survived other than myself.Thank you.Continue
My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back…Continue
Hello, I am in chronic rejection of my 2nd double lung transplant. I go to pulmonary rehab twice a week but it doesn't seem like it is enough to get me fit. I get out of breath easily and it is likely that I will ever go to a gym. So I was wondering what you guys do to stay fit at home?Continue
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