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New Version of Transplant Hero is available and has everything you have wanted...

Posted by Jay Graham MD on January 31, 2016 at 11:03am 0 Comments

Thank you so much for your feedback.   The new version of Transplant Hero has all the "bells and whistles"!

https://itunes.apple.com/us/app/transplant-hero-medication/id969039026?mt=8

But please, let me know how Transplant Hero can be improved.

Also the Android version is coming in Spring

Best, 

Dr. Graham

Post Transplant Lymphoprolifeative Disorder

Posted by Lili Feldman on December 30, 2015 at 4:08pm 8 Comments

PTLD

HAS ANYONE HEARD OF IT, or have it?

I may have it and would like to know of

anyone else's experience with it, or knowledge

Of it. Thank you.

heavenlyclouds@icloud.com

Life is short play Hard!

Posted by steve sullivan on October 4, 2015 at 11:29am 0 Comments

Life is short play Hard!

Posted by steve sullivan on September 27, 2015 at 8:45am 0 Comments

STILL IN REJECTION

Posted by Terri Lynne on August 30, 2015 at 8:33pm 0 Comments

I haven't posted since this started but still in rejection. September 11th, it will be 3 months since this started. It kind of was getting better so doc lowered prednisone to 15mg and let me go a month till next labs. I had those labs August 17th and they went up, a lot. He raised my Prednisone to 40mg for 7 days, 30mg for another 7 days. I am almost done with the 30mg and it will go back to 20mg. I am getting labs again Thursday. I've pretty much been getting labs every two weeks since this…

Continue

Hello all. New to this site 9 months post Liver Finding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? Welcome Anyone and anyth…

Posted by Don Kosolofski on August 27, 2015 at 5:59pm 1 Comment

Hello all. New to this site 9 months post Liver
Finding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? Welcome
Anyone and anything is fine Continue

So Grateful

Posted by Nancy Paske on July 29, 2015 at 8:43am 1 Comment

I celebrated my 5 th year since receiving the gift of a heart from an 18 yr old young man named Kevin Comeaux. I have met his parents & am in touch with them frequently. What a great blessing from God!

Niece in Need of Housing in Los Angeles

Posted by Janet Hart on July 29, 2015 at 7:48am 0 Comments

My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated.  Thank you.

Forum

Liver transplant, 4 yrs

Started by Amber Futchko in New to the Cafe? Introduce Yourself to the Community! on Saturday. 0 Replies

Hi,My name is Amber. I am a liver transplant recipient 4 years out. I am 28 years old and I am in school for nursing. The reason for needing a transplant is I have autoimmune hepatitis/primary sclerosing cholangitis. I had complications a month post surgery resulting in a 3 month stay at the hospital, the loss of my large intestine, and mental and emotional problems. I am in my second semester in school, I am in the pre-nursing program and hope to be accepted into the nursing sequence next…Continue

Complications after transplant

Started by Amber Futchko in Liver Transplants on Saturday. 0 Replies

I was wondering how many of you had complications that were due to your transplant and how it made things different for you?Continue

Last transplant bucket list wishes

Started by Jessica in New to the Cafe? Introduce Yourself to the Community! Jan 22. 0 Replies

Anything helps, even by just sharing this will help thank you.https://www.gofundme.com/nukj9ffw

gastroparisis

Started by Mary Ellen Revans in New to the Cafe? Introduce Yourself to the Community!. Last reply by Amber Futchko on Saturday. 6 Replies

I was wondering if anyone else has suffered from gastroparisis following their heart transplant.  If you have, how are you dealing with it....what works and what you have found does not work.  I am trying so hard to maintain my weight and it's not working too well.  Thanks for any help that you might be able to offer.Continue

Weird Health Issues

Started by Margaret Kelly in Liver Transplants Jan 14. 0 Replies

Hi,Was wondering if anyone out there has or is experiencing any of the weird and wonderful things that are happening to me at the moment.........................I will try and keep it short.....Night Sweats (so bad i need to change the sheets)Constant headache that worsens by the hournight seizures (kind of)dizzinessnauseaweird night time hallucinations (auras?)hardening of the arteries to my kidneys (neuro told me about this being in my notes i had no idea)I am 15 years post liver transplant…Continue

Tags: SYMPTOMS, WEIRD

Struggling with losing weight

Started by Herbert Maldonado in General Discussion & Community. Last reply by Herbert Maldonado Jan 13. 2 Replies

Hey everyone, it has been a long time since I posted. I hope everyone is well in health and life.One of my biggest issues now that I'm 8 years post-transplant is weight loss, and sleeping.  I think one of my downfalls while recovering from my transplant was that I sunk into depression and began taking anti-depressants which also helped with my anxiety.I've read that these type of medications can cause weight gain, and sleep problems. I spoke to my Doctor about it, but he feels that I should…Continue

Pulmonary Hypertension Post Liver Transplant

Started by Ernie Reymer in New to the Cafe? Introduce Yourself to the Community! Jan 11. 0 Replies

I had my liver transplant in November 2012. I know the Doctors had me go through a heart test approximately 6 months prior to the transplant. The Heart test was good. I always had difficulty breathing, fatique etc. after the transplant. I had to give up everything that involved exercise. The Doctors acted like this was normal and never did any further tests. I was recently diagnosed with Pulmonary Hypertension (No cure) and Pulmonary Fibrosis from Doctors at another Hospital. Has anyone else…Continue

Thank you!! Tenth multivisceral transplant anniversary!

Started by Bobbiejo Winfrey in General Discussion & Community. Last reply by Rebecca Gerla Jan 13. 1 Reply

Because today marks the tenth anniversary of my multivisceral transplant in which I got a new spleen, liver, pancreas, stomach, small and large intestine, I want to:T: ThankE: EveryN: NameT: ThatE: EncouragedN: Now!!This forum here has been a part of my journey since my transplant, and I feel this is a good day to express my gratitude to everyone here. For me:T: TransplantsR: RecallA: AndN: NameS: SpecialP: PeopleL: LovingA: Another'sN: NeedsT: Thoroughly.This refers not only to the donor and…Continue

Resons for Kidney rejection after 5 1/2 yrs.

Started by ATUL YADAV in New to the Cafe? Introduce Yourself to the Community! Sep 3, 2015. 0 Replies

What are the probable reasons behind rejection of transplanted kidney after 5 and half years ?Continue

My lung transplant

Started by Bob Abendroth in New to the Cafe? Introduce Yourself to the Community! Aug 14, 2015. 0 Replies

Lung transplant, my story.Before I begin, I would first like to thank the many people, without whom this may have never happened. To the doctors and nurses and everyone else at Johns Hopkins who have been absolutely amazing. To countless friends and relatives, I can't begin to name them all or to thank them all personally for all of their support and prayer. I feel that everyone has gone through this together with me, and John as well. To my immediate family, my sons and daughter-in-law who…Continue

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    Jay Graham MD posted a blog post

    New Version of Transplant Hero is available and has everything you have wanted...

    Thank you so much for your feedback.   The new version of Transplant Hero has all the "bells and whistles"!https://itunes.apple.com/us/app/transplant-hero-medication/id969039026?mt=8But please, let me know how Transplant Hero can be improved.Also the Android version is coming in SpringBest, Dr. GrahamSee More
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